Yet the nightmare continued, because the communication problems were not resolved.
During the next four years, her anticonvulsant medicines were changed about 25 times, which would have been hell for any family. The Lees questioned the value of so many prescriptions, especially with their Hmong mindset, and did not follow directions. Of course, this was exacerbated by the fact that they did not understand the dosages. The doctors inaccurately concluded that the Lees were endangering their child and placed Lia in foster care. She had a massive seizure several months later and was left brain dead. She continued to live, being cared for by her parents, despite doctors' expectations.
A major reason for this terrible situation was that the hospital did not have the right people on staff from the very start of the problem. The Lees should have been told what was being done and why and what would happen if their directions were followed incorrectly or not at all. The hospital should have learned about the cultural changes and the reason for the Lees behavior.
In some cases, some good comes out of a bad situation. In this case, when Lia's story in the Spirit Catches You was published it encouraged a number of medical schools and healthcare facilities to investigate what they were doing in similar situations. Since then, studies show that much progress has been made. A number of American medical schools are addressing this issue in their curriculum and hospitals are hiring...
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