Stress Management in the Caregiver Setting
An increasing body of evidence points to the intensity of the labor involved in caring, and the impact it has on the caregiver in a healthcare setting. Whether lay or professional, it seems that the potential for suffering among caregivers is enormous. When a person reaches a state of physical, emotional or mental exhaustion, burnout occurs, and it appears to affect both lay and professional caregivers alike. Almberg's study, for example, suggests that exhaustion and burnout from caring happen in many different cultures and that 'relatives who have been giving caregiver for many years may experience similar emotional exhaustion to that suffered by staff' (Almberg et al. 2007). Whether lay caregivers would express their state as burnout is questionable, since it tends to be a term mostly used in professional discussion, but there is evidence of high levels of stress and illness among informal or lay caregivers (Henwood 1998). Lay caregivers, in one study (Princess Royal Trust 2009), felt that it was not even of interest to professional caregivers whether they could cope or not. Over 70% of 1300 lay caregivers involved in this study reported that it was largely assumed that they would cope with looking after a person at home, and were not asked if they could do so. Are they not being asked because of ignorance, because of fears of what might turn up if they were asked, because of denial ... what is not known about does not hurt? Professional caregivers, however, are supposed to have special training which equips them to deal with the suffering of others dispassionately, maintaining a certain distance which 'protects' both them and their patients or clients.
Thesis: If work is our centre, but it fails us, for whatever reason, then we have literally lost our faith. The centre no longer holds and we may fall apart - showing all the signs and symptoms of stress and burnout, addiction and co-dependence.
Salvage (2005) writing from a nursing context and Dossey (1995) from a medical viewpoint both suggest that fostering the internalization of feelings, as part of the socialization of caregiver workers, has serious consequences for the caregiver. Doctors, nurses and others, including perhaps lay caregivers, are all given clear signals that we are supposed to act as if 'we can take it': don't complain, never ask for help, never call for more resources, no matter how difficult the situation becomes. If we break this unwritten rule, the response of the uncaring culture is often to blame the victim. The caregiver who complains may find themselves being asked 'What is wrong with you that makes you unable to cope?' instead of getting a response that recognizes that more help is needed. The impact of this attitude, this whole cultural approach to caring, is chilling. Evidence is accumulating about the price that is paid by caregivers, both lay and professional. The World Health Organization (WHO) (2004) saw burnout, the exhaustion and loss of function associated with stress at work, as a major problem for caregiver professionals. Factors such as inadequate resources, lack of involvement in decision-making at work, authoritarian leadership styles, excessive case loads and poor staff relationships are all cited as significant causes. Similar factors appear in a Health Education Authority report (1996), which noted the principal effects of stress as emotional symptoms (e.g. depression, hopelessness, despair, anger, frustration, reduced enjoyment at work and home, suicidal feelings), behavioral changes (e.g. poor concentration and decision-making, absenteeism, marital and work conflicts, increased use of tobacco and alcohol and physical effects (e.g. high levels of various illnesses such as infections, back pain and headaches. The report also highlighted a number of causes specific to the health services. Like the WHO report, it found the causes of stress to lie in heavy workloads and lack of support, but emphasized also ineffective communication and consultation systems, invasion of personal space and lack of respect for functional and professional boundaries and pressures leading to an inappropriate management style. Additionally things like loss of support in a work community through radical reorganization, financial considerations taking precedence over human resource considerations, and the problem of getting the right balance between the two, disputes between managers and medical consultants and between other groups of staff or lack of coordination between departments and between individuals were also included. One is also advised for that the patients and families not be more demanding following the Patient's Charter, threaten with physical and verbal abuse,...
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