Spirit Catches You and You Fall Down by Anne Fadiman is a groundbreaking book about cross-cultural communication in health care. The book is about Lia Lee, who was the first in her Hmong family to be born in the United States. Her parents spoke no English. When Lia Lee was three months old, she had her first seizure. Due to misdiagnosis, a string of unfortunate events prevented Lia Lee from receiving the best possible care. Moreover, she was wrested from her family of origin and placed in foster care. The disruption to her life, the misdiagnosis, and the lack of communication between the health care team and her family led to her eventual death after decades in a persistent vegetative state. The Spirit Catches You And You Fall Down has become critical reading material for all health care workers seeking to provide the best quality of care in a multicultural environment.
Lia Lee had epilepsy, a condition known as qaug dab peg in the Hmong culture. Qaug dab peg is regarded "with ambivalence" by the Hmong, according to Fadiman (p. 21). This is not to say that Hmong treat the condition lightly; rather, they treat the condition quite seriously but just not in the same manner as Western medicine. Fadiman makes it clear that the Hmong have a historic and cohesive system of shamanic medicine with its own lexicon, diagnostic, and treatment procedures. The diagnosis of qaug dab peg entails various shamanic rituals and treatments designed to reunite a wandering soul with the suffering body. A diagnosis of qaug dab peg is not viewed as a disease in the same paradigm as Western medicine. Rather, qaug dab peg is viewed primarily as a spiritual condition that is to be accepted and worked with from within a Hmong perspective. Quag dab peg is translated as "the spirit catches you and you fall down," referring to the sinister dab spirit that steals souls.
The Lee family did not want their daughter to undergo invasive surgery, or to take powerful anticonvulsive medications like ampicillin and Dilantin to control seizures and other drugs to counteract symptoms and conditions like pneumonia. However, Lia Lee's seizures became too frequent and severe to ignore, and outside of their Laotian villages they could not find shamanic treatments to help their daughter. They would have preferred that Lia Lee see a traditional Hmong doctor, who would perform the traditional rites that constitute healing and medicine in their culture. Eventually, the parents took Lia Lee back to the hospital.
Once they took this vital step of using the American health care system, they essentially surrendered the right to care for Lia Lee in the manner they believed was best. American law entitles the health care team to make decisions on behalf of Lia Lee in order to save her life. In the case of Lia Lee, unfortunately, the decisions that were made ended up being detrimental even if the doctors and health care team had the child's best interest at heart.
The Lee family made the long journey to the United States with virtually no money. They lived in refugee camps in Thailand before arriving in California. Their eventual destination was Merced, which already had a pre-established Hmong refugee community. Because of the existence of the Hmong refugee community in Merced, it seems criminal that the doctors at Merced Community Medical Center did not try harder to find a translator for the family when they recognized Lia Lee's condition. Had communication been established from the onset, many of Lia Lee's problems might not have manifest.
Communication might have alleviated the parents' fears about the nature of Western medicine. The model of Western medicine is paternalistic, which assumes patient ignorance and often deliberately preserves patient ignorance by cloaking health and illness in jargon. Because Hmong culture is particularly resistant to foreign authority, Fadiman points out the problems with a paternalistic medical model especially when dealing with patients who would prefer to be treated and consulted with deeper respect. The health care team in this case believed they were doing the right thing because they were following procedure, but they did not necessarily act out of respect. The health care team viewed the Hmong beliefs as being primitive and actually as being irrelevant, when those beliefs were highly relevant to treating Lia Lee. The Hmong view paternalistic medicine "not as a gift, but as a form of coercion," (Fadiman 37). No one on the health care team tried to explain why the invasive procedures being used on Lia Lee were...
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