Hunt, G.M. (2003). Outcome in people with open spina bifida at age 35: Prospective community-based cohort study. BMJ: British Medical Journal, 326(7403), 1365-1366.
doi: 10.1136/bmj.326.7403.1365
A survey of surviving adults with spina bifida myelomeninocele was conducted. The study looked at multiple aspects of the person's life including hospitalization, independence of lifestyle, associated health problems, and present level of disability. Studies of adults with spina bifida were not well represented in the larger field of research; as such, this article provides invaluable insights into the ongoing care that is required for surviving patients.
Lindgren, C.L., Burke, M.L., Hainsworth, M.A., & Eakes, G.G. (1992). Chronic sorrow:
A lifespan concept. Scholarly Inquiry for Nursing Practice, 6(1), 27-40. Retrieved April 1, 2011, from http://www.questia.com/PM.qst?a=o&d=5035235041
A more global perspective on how parents of children with chronic illness channel their grieving. The article addresses myelomenginocele in terms of psychological effects it has on families. It briefly addresses the profound impact of the severe disability of a child and discusses coping strategies.
Moretti, M.E., Bar-Oz, B., Fried, S., & Koren, G. (2005). Maternal hyperthermia and the risk for neural tube defects in offspring. Epidemiology, 16(2), 216-219. doi: 10.1097/01.ede.0000152903.55579.15
This article concerns a systematic review of several studies into myelomeningocele in the interest of determining whether a mother's high body temperature could cause risk of an infant developing the condition in utero. The study found that maternal hyperthermia did increase risk.
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Spina Bifida and Nursing Care Interventions The purpose of this study is to examine spina bifida and nursing care interventions. Spina bifida is a birth defect in central nervous system occurring due to neural tube failure to close during embryonic development. The term spina bifida "comes from Latin and means 'split' or 'open' spine." (Laser Spine Institute, 2009) Spina bifida is reported to occur most commonly at the end of the
Although most people with Spina Bifida have normal intelligence, many have learning disorders. Adequate treatment of hydrocephalus and adaptive physical therapy are necessary to permit access to educational opportunities. This is also an aspect that has affected my sister. One of the central facets that many experts note is that "Psychological, social, and sexual problems occur more often in people with spina bifida than in the general population. " Another problem
Kyle Thornton Spina Bifida Statistics of Disease Etiology of Spina Bifida Pathology and Physiology of Spina Bifida Signs and Symptoms Diagnostic Tests Medical Treatments Physical Therapy of Spina Bifida SPINA BIFIDA Neural tube defects are the second most common congenital defects in the United States. This occurs due to a defect during early fetal development. These defects are classically of two types, open and closed. Spinal NTDs (spina bifida), anencephaly, and encephalocele are examples of open defects. Common examples of
Spina Bifida is one of the many birth defects neonates are at risk of. However, this particular defect is unique because it is characterized by problems in the central nervous system (CNS) and it has a low death rate. The causes of this medical condition are quite difficult to determine as they are subject to hereditary and environmental elements. Simply put, Spina Bifida refers to a situation where the spinal
1995;4:303-320. Crocker, AC (1997) the Impact of Disabling Conditions in Children. Wallace RG, Biehl JC, MacQueen, and Blackman JA (Eds.), 1997 Mosby's Resource Guide to Children with Disabilities and Chronic Illness. St. Louis: Mosby-Year Book, Inc. 1997. Evans O, Tew B, Laurence KM. The fathers of children with spina bifida. Zeitschrift fur Kinderchirurgie [Surgery in Infancy and Childhood]. 1986;41 Suppl 1:42-44. Fagan J, Schor D. Mothers of children with spina bifida: factors
Assistive Technology | Importance of assistive technology Assistive technology makes it possible for individuals with disabilities or cognitive impairments to redefine their lives and work towards an independent lifestyle. Assistive technology is also vital for encouraging learning and achievement in the classroom. On August 16, 2006, the federal government approved PL 100-407, otherwise known as the Technology-Related Assistance for Individuals with Disabilities Act. The definition included in that regulation was slightly modified
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