There are things parents can do to help children who have a parent suffering from Parkinson's disease. They can make sure the children understand the disease and how it affects the parent. They can build a support network of friends and relatives to help out when necessary and to nurture the children when they need it. One man, married to a wife with Parkinson's writes, "Strong wrote her book at a time when the plight of 'well spouses' was ignored by doctors, the government, and even friends, who tended to be concerned only with the ill spouse. 'The rest of the world shies away or just plain flees,' she wrote. 'Few people know who we are and what we need'" (Kondracke, 2001, p. 166). Instead of "fleeing," well relatives need to offer help, support, and concern to the family, and worry about the children, too.
Many children may suffer because of lack of attention, too. The family may be so caught up in taking care of the patient that there is little time left for the rest of the family. It may seem to them that they no longer matter, and that the suffering parent has become the focus of the household. They may even react negatively to this lack of attention. Experts recommend explaining the disease and the changes it will necessitate to the children, and involving them in a team effort to help the patient.
Finally, it is clear that Parkinson's disease can have a huge affect on the entire family. A mother may be unable to care for her children or continue working. A father may be unable to work and provide for the family. Adult children may be faced with issues of mortality they would rather not face, such as urging parents to set up Living Wills and "Do Not Resuscitate" orders with their physicians. Children of any age can be deeply affected by the death of a parent, and sadly, many parents suffering with Parkinson's leave behind family. Dealing with the loss...
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