It is important to evaluate the behavioral patterns of social workers dealing with such patients. The main purpose of such research is to identify the possible causes for such behavior so that necessary measures can be taken to reverse the situation.
Role of Hospice Social Workers
As shown by the statistics presented by NHPCO, 2005, although more than 81% of end-stage dementia patients are adults over 65 years, only 8% are found to be treated in hospice settings. Since dementia lists under the top five illnesses causing death in elderly patients above 65 years, this equates to only a fraction of the thousands of patients who die annually of dementia receiving specialized end of life care provided by hospice programs (Simons et al. 2011).
When end-stage dementia patients are present in hospice settings, presence of social workers adds a psychological perspective to the organizational setting. These hospice social workers tend to perform a variety of functions such as counseling, brokerage of community resources, advocacy for end-of-life wishes and also educating the family of the patient about the dying process. All these roles emerge out of systems theory and promotion of patient's self-determination (Sanders & Swails, 2011). In addition to that, it is also a responsibility of the social worker to provide concrete and relevant information regarding patients' current state to their families. Furthermore, the nature of medical decisions that may be required in the process of treatment and also about the dying process, is the information that a social worker is expected to share with the family of the patient. (Shanley et al., 2011).
As far as the patients having end-stage dementia are concerned, the social workers' responsibility towards patients' caregivers and their other family members increases even more. However, this does not reduce the extent of responsibility of social workers to the patient. All the traditional roles played by the social worker while dealing with patients' family does not excuse them for not treating the patient rightly. This means that the role of social worker as a care taker towards the patient enhances when the patient is suffering from end-stage dementia (which further makes them unable to communicate and fail to show substantial responses to the treatment). This one-way communication and input of efforts makes the social workers feel discontent while interacting with the patient. However, the case might be opposite while dealing with the patients' families and caregivers. Such scenarios make the social workers face difficulty in identifying actual definition of their role with reference to end-stage dementia patients causing role ambiguity.
According to Sanders and Swails (2009), hospice social workers define their interaction with patients with dementia as "limited, ambiguous, and not rewarding" and commented that visits to patients with end-stage dementia were not a good use of time or expertise (given the perception of the social workers that meaningful therapeutic relationships could not occur). Hence, there is a visible strain on the relationship of social workers and patient which makes it rather challenging for hospice social workers to provide required care services to patients with dementia. Research has proved that the health of therapeutic alliance between the social worker and the patient depends on various factors where one is in a considerably healthy state than the other (Sanders and Swails, 2011). The research further leads to a conclusion that a cognitive impairment in patient can lead to a prevention of therapeutic alliance's formation i.e. therapeutic relationship may not develop between the patient and social worker. In case of end-stage dementia, this theoretical perspective is valid. As a result, an assumption can be made that there is some probability that an ineffective relationship between the end-stage dementia patients and the respective social care worker may exist from this inception. Since the relationship is ineffective from the start of the treatment; there is a possibility that the social worker may not be able to provide the required level of care.
Interaction between the Social Worker & Dementia Patients
Symbolic interactionism can act as a fundamental tool for understanding the significance of social worker's role while treating stage-end dementia patients. This phenomenon levies special emphasis on human interaction especially the one that takes place between the individual / group and those around him. When the symbolic interactionism is considered with reference to the relationship between the social worker and end-stage dementia patient, the patient is considered as the secondary person. Looking at this model, there are three rationales involved: (1) People respond to each other on the basis of the meaning of relation which...
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