Omid's Story
Being ill is never a simple thing. Besides the physical tolls a medical condition can take on a person's body, there are also many mental and psychological costs that affect a sick person. Nor do these physical and mental effects only harm the person with the medical condition. Research shows that family members and close friends of ill people will also be seriously affected by the condition. Illness is a physical, mental, sociological, and financial drain and, in some family units, an illness can destroy the fabric of the family itself. A person who is involved in the medical profession must have a clear understanding not only of medicine and what they need to do to cure or treat an illness; they must also be aware of the psychological issues that a patient deals with, along with the pressures which are placed upon members of their family. Nurses are therefore tasked not only with treating the mind and the body of their patient but also with trying to preserve, maintain, and strengthen the family dynamics of their patients. In the article "Omid's Story: The Power of Family-Centered Care," author D. Raoufian explains what she experienced when her own son Omid became ill and how the family dynamic in which he lived was integral to the care he received. This first-person essay explains how one family dealt with an illness of a child, and by extension, illustrates the importance and effectiveness of family-centered care in the treatment of disease or injury in patients, particularly those with prolonged conditions.
First it is necessary to fully explain what is meant by family-centered care. Family-centered care is primarily found in pediatrics' medicine because children who are seriously or chronically ill require the greatest support system, but it has also been used with adult patients to a great deal of success. According to research conducted by Tondi Harrison (2010), "Providing FCC means that the clinician incorporates into caregiving the knowledge and conviction that family is the constant in children's lives, children are affected by and affect those with whom they have relationships, and, by including families in care processes, children will receive higher quality care" (page 335). The argument is that the more the parents and loving family members are involved in a child's care, the more likely that child will be to receive quality care and, consequently, the more likely the child will be to recover from their medical condition and to thrive later on. Before the middle 20th century, all medical conditional were treated by medical professionals within the hospital setting. Parents and other family members were not involved in the treatment of their loved ones after their care had been taken over by professionals. This scenario changed when the psychological ramifications of isolating ill children from their family became known. For more than fifty years, those in the medical profession have been aware about the importance of family to sick children and the fact that there is still a breach between the information of the medical staff and the parents and family members can be considered nothing short of reprehensible.
St. Jude's Children's Hospital, which is a non-profit facility that specializes in treating cancer in minors throughout the United States regardless of the financial situation of the family, utilizes family-centered care as an important factor in the treatment of patients. According to this group, patient family centered care is based on four criteria: dignity and respect, information sharing, involvement, and collaboration (St. 2013). To fulfill these criteria, hospital staff are responsible for first listening to the patients and their families and honoring the ideas and choices which family members make. The heritage of the family, including religious and cultural practices must also be taken into consideration. It is never beneficial to malign the beliefs of the family or to take that attitude that those in the medical profession are superior to the family, although they make be less informed about treatments or even the condition from which their family member suffers. St. Jude's hospital (2013) states, "Care provided should be equal to all patients and flexible so that the needs and choices of families can be met." Secondly, the sharing of information from the medical professionals to family members is extremely necessary. "Open honest communication between patients, their families, and health care staff [is necessary]. Being willing to talk about the bad as well as the good is important for changing, improving, and...
This recognition that injury and pain, common accompaniments to illness and medical treatment effect the whole family, not just the person suffering the illness or injury was profound. (Tallian, 2001, p. 119) Going through such an exercise as role playing is invaluable to the care provider as it offers the concepts in such a way that the individual can internalize point-of-view and begin to understand the steps needed to
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