¶ … Mirror" by Connie Panzarino
The Me in the Mirror" is an autobiographical work written by Constance Panzarino, a writer, activist and artist who talked about her life as a disable cause by the rare disease Spinal Muscular Atrophy Type II. Connie Panzarino was born on November 26, 1947 in Brooklyn, New York, and her book chronicles her life as a child growing and living with the said muscular disease. The book is divided into different sections that focus on various topics, and her narration is not a chronicle of her life from childhood to adulthood, but rather, Panzarino touched various aspects of her life as a disabled person. In addition to her struggle for physical mobility, her book speaks of her struggles also as a woman who is disabled, as an individual doing passionate work for her fellow disabled individuals, and most importantly, her fight against the concept of "Ableism," a term that she coined to describe the belief that people have more power and more right to things when they're stronger and more able. In effect, Panzarino's fight against ableism is her way of destroying what she terms as "disability oppression." This paper will focus on Panzarino's struggle and experiences as a disabled person when she was a child until she reached adulthood. In addition to the discussion of her life as child to an adult (which is included in her book, "The Me in the Mirror"), Panzarinos' life as an activist (feminist and advocate for equality among "able- bodied" and disabled people) will also be discussed, since her revolutionary thoughts and ideas about 'disability oppression' presents a valuable position for people who are also physically disabled like Panzarino and can relate to people easily, aside from the fact that Panzarino presents to her readers a descriptive view of what it is like to live with disability -- the hurt, pain, struggles, and also the happiness, fulfillment, and compassion one feels for and to a disabled person.
Constance Panzarino, often called Connie by her friends, had experienced the extraordinary life of a child afflicted with a rare muscular disease, and her suffering and pain is chronicled in her autobiographical book. In the second section of her book, entitled "Green Walls," Connie tells us of her disdain towards the 'green things' she had encountered as a child, who was always admitted to hospitals and subjected to probing of different doctors and medical assistants to know the nature of her sickness. She described her sickness in simple terms (since her point-of-view then was that of a child's) that she "couldn't pull myself into a sitting position and could not maintain my head and neck balance the way other children did" (15). She also dreaded her visits to hospitals and doctors, and her dread for the color green emerged because of her associations of the said color with her feelings of fear and discomfort as she was committed, probed, and examined by doctors in hospitals that somehow bore the color of green on its walls. This part of Connie's narration of her childhood reminds me of the psychological impact that her disease and her hospital visits caused her, which, as we readers know, will only become worse when she's finally grown as an adult and is exposed to the harsh prejudice of the society and people around her. However, despite the physical disability that she had at such a young age ("I was asked to do all the kinds of things I couldn't do -- lift my head, move my arm, move my foot... I feel bad that I couldn't do what was being asked of me."), Connie also felt that there is something good that must come out of her unfortunate affliction to the rare muscular disease. True enough, the rare muscular disease is scientifically proven to occur along with higher degree of intelligence. Indeed, at the age of ten months, she was able to talk. She recalls this extraordinary fact of her childhood as a painful one, since "nobody seemed to care that at ten months," Connie was able to talk. This higher degree of intelligence that Connie had at ten months was also associated with painful memories of the "tortuous" experiences she had, and she reasoned that these experiences are painful for her because of the clear memories that she have, a result of her early acquisition of speech.
Connie also tells her of her continuous struggle not only with her disease, but with also her mother, and the physical exercises that her mother subjects her to. Recalling the memories...
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