Also, some families are more active in taking care of end of life patients than other families.
Indeed, hospice care providers have a significant number of responsibilities as it relates to taking care of the patient. The type of illness that the patient has can increase or decrease the number of responsibilities of the hospice care providers. In any case, hospice care providers provide services tat ensure the comfort of the patient and they also attempt to make the emotional and psychological issues associated with dyeing, more palatable for the patient.
In addition to the issues that arise for the patient, caring for a loved one that is terminally ill is also extremely difficult for family members. As was mentioned previously in the discussion the purpose of a hospice is to serve both the patient and the family of the patient.
The family must be educated concerning the condition of the patient and how to care for them. In addition, if the patient has a long-term debilitating illness such as Alzheimer's disease, the family may have to be educated concerning the needs of the patient and the progression of the disease (Jennings et al., 2003). Additionally the family of a patient often requires access to mental health professionals because of the stress and depression that may occur as a result of caring for a loved one or dealing with the inevitability of death (Jennings et al., 2003). The hospice care is also there to assist the family when the patient dies. Many hospice programs provide bereavement counseling and may even assist with funeral arrangements. All of these services are extremely valuable to the family when they are losing someone that is loved (Jennings et al., 2003).
Most hospice care programs hold family conferences. The first family conference usually takes place when hospice care first begins (Forman, 2003). During the initial conference difficult emotional issues are discussed and the patient identifies various caregivers within the family who will be responsible for making decisions (Forman, 2003). The family conference is also important for the hospice care givers because it allows them to see the family dynamics and whatever communications problems that may be present within the family (Forman, 2003). Having this information allows the caregivers to bridge some of the communications gaps that may already exist within the family (Forman, 2003).
The author points out that at least one member of the interdisciplinary team must be present during the family conference.
Although hospice care workers such as nurses, doctors and psychologist are the most prominent members of the interdisciplinary team, social workers also play an important role in hospice care as it relates to patients and their families. According to an article found in the journal Health and Social Work, social workers are often needed in a hospice care situation to assist families in dealing with ethical dilemmas related to patient care (Csikai, 2003). Ethical dilemmas may include the type and dosage of pain medication that the patient will receive. In addition ethical dilemmas may be inclusive of the patient desire not to be on any life sustaining machines or vice versa (Csikai, 2003). The article further states
Other frequently discussed issues were families' denial of the terminal illness and that families might not be following the patients' wishes, which could cause or increase the risk of patient-family conflict (another identified common issue). Social workers can provide significant input into the resolution of these issues and discuss with other team members strategies they can use during home visits with patients and families. The resolution of these difficulties in hospice might make a critical difference in whether the patient has a "good death;" often defined as a death that occurs at home in concert with the patient's wishes and preservation of self-determination (Reese, 2000; Csikai, 2003)."
Because the aforementioned issues exist within the context of hospice care, it is important that the social worker is qualified to take on this type of responsibility. The social worker can greatly impact the ability of patient to die in the manner they wish.
Hiring hospice care providers
As a result of the type of care that is provided by a hospice program, hiring employees to work at a hospice program can be a difficult and complex undertaking. The difficulty associated with hiring the proper people exist because hospice care can be stressful and emotionally taxing on caregivers. Just because of nurse is equipped at working in a hospital or some other type of medical facility, they may not have the capacity to work in a hospice care program.
Death and Dying 'My new body was weightless and extremely mobile, and I was fascinated by my new state of being. Although I had felt pain from the surgery only moments before, I now felt no discomfort at all. I was whole in every way -- perfect," (Eadie "Embraced" 30). In her groundbreaking book Embraced by the Light, Betty J. Eadie writes about her own near-death experience to help dispel the
Healthcare The Pilgrims Must Embark addresses specific issues associated with treating persons with AIDS (PWA). The film exhibits the importance of cultural sensitivity and communications in nursing. "Many hospitals are ill equipped to care for the chronically ill, and nursing homes are reluctant to admit PWA," (Adelman & Frey, n.d., p. 4). Creating an independent but assisted living community became the central challenge, focus, and goal of the Bonaventure House. The
Kubler-Ross, Elisabeth. On Death and Dying. Scribner, 1997. A seminal work on the subject of death and dying, Kubler-Ross's book was initially published in the 1960s and remains relevant. On Death and Dying is a commentary on the views toward death and dying held by our culture and therefore illustrates the underlying moral and ideological principles that have guided public policy in the area of right-to-die ethics. Moreover, Kubler-Ross emphasizes
Hospice and Attitudes Towards Death Attitudes towards dying, death, and bereavement are very dependent upon culture. Some cultures embrace death as a natural part of the life cycle and do not attach fear to death. Other cultures are very fearful of the topic of death and treat it like a taboo. "In many preliterate societies, the dead are imbued with special powers and considered potentially harmful to the living. Many customs
Field, Marilyn Jane & Cassel, Christine K. (1997). Approaching Death: Improving Care at the End of the Life. National Academic Press. This work emphasizes the necessity to improve end of life care as a way to help ease fears about death and reduce anxiety which would create a more negative death experience within the nursing home. Additionally, this work shows the negative impact of over treating symptoms that are relating to
2006, p.1). In Anglo culture, extremities of grief may be reserved for close family members, while in cultures where extended family is important, intense grief may be acceptable and expected, even for distant family members There is also greater acceptance of death in the Latino culture as a whole, as manifest in the almost festive 'Day of the Dead' rituals in that nation, in which children often participate, and
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