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Coping With Sickle Cell Disease Research Proposal

Both parents and adolescents will be solicited to contribute to the following components will the condensed/adapted to utilize in creating questions for parents of the adolescents with SCD, as well as, for interviewing and/or surveying adolescents with the disease. Areas adolescents with SCD most need help

Obtaining accurate information about SCD

Considerations for coping with everyday challenges

Getting/giving help

Sharing strength; stories; suggestions with others

Supporting, as well as accepting support

How to best deal with family conflicts

How to cope when one feels he/she cannot

Learning to live, while living and learning

Simple strategies to solve complex problems

Securing spiritual strength

Surviving hospital stays

Having fallen even when it hurts

Strategies four surviving school

Career choices/considerations

Relating with boy/girl friends

Belonging

Learning and then learning to express compassion

References

http://www.questiaschool.com/PM.qst?a=o&d=27269466

Bailey, E.J. (2000). Medical Anthropology and African-American Health. Westport, CT: Bergin & Garvey....

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Retrieved September 7, 2007, from Questia database: http://www.questia.com/PM.qst?a=o&d=27269543
Burlew, PhD, Kathleen, Telfair, DrPh, MSW, Joseph, Colangelo, MA, Linda, Wright, Ph., Elizabeth C.. "Factors That Influence Adolescent Adaptation to Sickle-cell Disease." Journal of Pediatric Psychology, Vol. 25, No. 5, 2000, PP. 287-299.

Gil, Karen M., Williams, David a., Thompson, Jr., Robert J., and. Kinney Thomas R. "Sickle Cell Disease in Children and Adolescents: The Relation of Child and Parent Pain Coping Strategies to Adjustment." Journal of Pediatric Psychology, Vol. 16. No. 5, 1991, pp. 643-663.

Kliewer, Wendy and Lewis, Hellen. "Family Influences on Coping Processes in Children and Adolescents with Sickle Cell Disease. " Journal of Pediatric Psychology, Vol. 20, No. 4, 1995, pp. 511-525.

Sickle cell FAQ's. (2007). EverythingSickleCell.com. Retrieved September 8, 2007, at http://www.everythingsicklecell.com/faqs.php

http://www.questiaschool.com/PM.qst?a=o&d=5001163992

Telfair, J., & Gardner, M.M. (2000). ADOLESCENTS WITH SICKLE CELL DISEASE: Determinants of Support Group Attendance and Satisfaction. Health and Social Work, 25(1), 43. Retrieved September 7, 2007, from Questia database: http://www.questia.com/PM.qst?a=o&d=5001163992

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References

http://www.questiaschool.com/PM.qst?a=o&d=27269466

Bailey, E.J. (2000). Medical Anthropology and African-American Health. Westport, CT: Bergin & Garvey. Retrieved September 7, 2007, from Questia database: http://www.questia.com/PM.qst?a=o&d=27269543

Burlew, PhD, Kathleen, Telfair, DrPh, MSW, Joseph, Colangelo, MA, Linda, Wright, Ph., Elizabeth C.. "Factors That Influence Adolescent Adaptation to Sickle-cell Disease." Journal of Pediatric Psychology, Vol. 25, No. 5, 2000, PP. 287-299.

Gil, Karen M., Williams, David a., Thompson, Jr., Robert J., and. Kinney Thomas R. "Sickle Cell Disease in Children and Adolescents: The Relation of Child and Parent Pain Coping Strategies to Adjustment." Journal of Pediatric Psychology, Vol. 16. No. 5, 1991, pp. 643-663.
Sickle cell FAQ's. (2007). EverythingSickleCell.com. Retrieved September 8, 2007, at http://www.everythingsicklecell.com/faqs.php
http://www.questiaschool.com/PM.qst?a=o&d=5001163992
Telfair, J., & Gardner, M.M. (2000). ADOLESCENTS WITH SICKLE CELL DISEASE: Determinants of Support Group Attendance and Satisfaction. Health and Social Work, 25(1), 43. Retrieved September 7, 2007, from Questia database: http://www.questia.com/PM.qst?a=o&d=5001163992
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