Both parents and adolescents will be solicited to contribute to the following components will the condensed/adapted to utilize in creating questions for parents of the adolescents with SCD, as well as, for interviewing and/or surveying adolescents with the disease.
Areas adolescents with SCD most need help
Obtaining accurate information about SCD
Considerations for coping with everyday challenges
Getting/giving help
Sharing strength; stories; suggestions with others
Supporting, as well as accepting support
How to best deal with family conflicts
How to cope when one feels he/she cannot
Learning to live, while living and learning
Simple strategies to solve complex problems
Securing spiritual strength
Surviving hospital stays
Having fallen even when it hurts
Strategies four surviving school
Career choices/considerations
Relating with boy/girl friends
Belonging
Learning and then learning to express compassion
References
http://www.questiaschool.com/PM.qst?a=o&d=27269466
Bailey, E.J. (2000). Medical Anthropology and African-American Health. Westport, CT: Bergin & Garvey....
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