Culture and Counseling
In her book The Spirit Catches You and You Fall Down, author Anne Fadiman recounts the life and death of a little Hmong girl living in Merced, California. Lia Lee had what Western doctors call epilepsy, and which the Hmong have a far more lyrical explanation that lends itself to the title of Fadiman's book. The most common neurological disease, epilepsy can be frightening and potentially debilitating. However, in cultures around the world and throughout time, from the Hmong to the ancient Greeks, epilepsy opens pathways to creativity and an increased understanding of the universe. Thus, as Fadiman points out, many epileptics become shamans. When Lia Lee first started having epileptic seizures, her mom Foua, speaking not a word of English, rushed her to the Merced Community Medical Center. There, doctors tended to the eight-month-old child as best they could under the circumstances. Because all she was doing was coughing when she arrived at the hospital, doctors gave her chest x-rays and diagnosed Lia Lee with "early bronchiopneumonia or tracheobronchitis," unaware that she had just recently seized. The same thing happened on more than one occasion until finally Lia Lee was rushed to the medical center in the middle of a seizure. Visible evidence at hand, doctors were then able to accurately diagnose Lia Lee's illness and prescribe a course of treatment.
That all would have been simple enough had Lia Lee's family been able to communicate with the doctors at Merced Community Medical Center (MCMC). Fortunately, the first doctor that did treat Lia Lee for her epilepsy was a resident named Dan Murphy, who had what Fadiman describes as love and deep respect for the Hmong culture. Still, potent linguistic and semantic barriers remained in place, preventing Lia Lee from receiving the treatments that would have best suited her. Thrown into the care of doctors and medical specialists who, in spite of good intentions, failed to meet the needs of Lia Lee and her family, little Lia Lee was eventually wrested from the loving arms and placed into a foster home. As a ward of the state, Lia Lee and her family suffered immensely, and for no real reason. The doctors that recommended her transfer into foster care believed that the Lee family's noncompliance with treatment was a sign of gross neglect, even child abuse. However, through her book Fadiman captures the underlying causes of the patient noncompliance: culture clash, the root of the difficulties faced by not only Hmong living in Merced but by non-whites and non-native English speakers throughout the United States. Culture clash is not limited to the language barrier, although that is a significant aspect of it and one that needs to be adequately addressed by the medical and social scientific communities. Besides language barriers, obstacles to cross-cultural communication include ethnocentricism, competing worldviews, metaphysical arguments, and a conflict of the essential philosophies and values of life. Such matters can hardly be captured by a translator, which is why linguistics is only one facet of the problem.
The Spirit Catches You and You Fall Down examines the various obstacles toward patient-doctor communication in a cross-cultural setting. Seeing what happened with Lia Lee, Fadiman advocates mandatory multicultural awareness programs in all medical communities, in fact all service communities. By incorporating cross-cultural sensitivity into their training programs as more than just theoretical, politically correct lip-service, the problems faced by the Lees could in the future be avoided. Because most communities in the United States are multi-ethnic, the message of The Spirit Catches You and You Fall Down is an urgent one. Families like the Lees experience similar situations every day in the United States. Whether they are from Mexico or Montenegro, Latvia or Laos, individuals from nations other than our own often receive inferior treatment at hospitals and by doctors who feel they know what's best. Paternalism is the problem, an attitude of subtle condescension that mars the doctor-patient relationship and undermines treatment. The Hmong provide a perfect example of the failure of Western medicine to escape paternalism and its cousin, arrogance. As Fadiman points out, Hmong culture is historically resilient and proud. Like so many ethnic minorities, the Hmong have been persecuted for centuries, driven out of their ancestral homes in mass exodus. Preserving their communities has not been easy. When Hmong come into contact with paternalism, they naturally turn their noses and shut their eyes.
Non-compliance, therefore, comes not from arrogance on the part of the Hmong, but rather, from a justified suspicion of a paternalistic medical culture, of the imposition of Western culture,...
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